The Extra Mile - The Official Charity Miles Podcast

Today’s interview is with a guest I’ve previously had on the Extra Mile, Julia Vitarello. If you haven’t heard that episode, I urge you to. It is one of the most moving episodes I have ever recorded. In that episode, which was around two years ago, Julia told us the story of her daughter Mila, who at age 6 was diagnosed with an extremely rare and currently incurable neurodegenerative disease called Batten Disease. At the time, Julia was embarking on funding a very expensive clinical trial to try to slow the progression of the disease. Until then, there was little-to-no research or any resources for Batten Disease. And even less about the unique type that Mila has.  Julia went on to start Mila’s Miracle Foundation to Stop Batten and set off a series of fast-moving and ground-breaking innovations in research and medicine which have begun to pave a path for treatment for hundreds of similar neurodegenerative diseases.  You won’t believe this story. When I first heard it, it hit me very hard. And it has hit me ju